Ben Brewer's Blog

Musings on Ben and his family

Minecraft and Fring

image Ben is looking for some Minecraft players to hang out with. If any of you have kids who play Minecraft, let me know.

Both kids are also on Fring, which is like Skype. If you’d like to video chat with them, shoot me an email. I won’t put their usernames on here because I don’t want any deviants contacting them and scarring them for life.

The trip to New York went well. Ben tolerated the treatment and was up and about by Sunday morning. He got to spend some time with his buddy Justin, too!

Blessings,
Matt

Back to New York

Here’s another short video from Ben as he prepares for another trip to New York. His buddy Justin is there and I hope they can connect for some Lego fun.

Blessings,
Matt

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All Systems Are Go!

We learned yesterday that Ben is still HAMA negative, down to 307!

Sloan called today to let us know that Ben’s next round of treatment is scheduled for the week of January 16! Thank God for this good news. The treatment is working, as dreadful as it is for Ben to receive it, and I’m very thankful that Ben gets to go back to Sloan for another round. Hopefully he won’t HAMA out on this one…

Love and prayers to all of you who have supported Ben and the rest of us on this crazy journey. Please continue to pray for Ben and his other friends, particularly Justin, who continue to battle cancer. I truly believe that God hears your prayers and is sending healing down here.

Blessings,
Matt

Still NED!

We got word from the hospital today that Ben is still NED! Thank God for this great news and thank you for your continued prayers and support!

Blessings,
Matt

The Tooth Fairy Cometh

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Madeline lost another one… This makes the third tooth she had lost in the last couple of weeks. The last one netted her $5, mainly because I couldn’t make change for the $5 the Tooth Fairy had on him. Last night’s tooth got her a dollar. I think she is plotting how to overthrow the world with her $6 or probably just wants a new Monster High doll.

As for Ben, it turned out to be a mostly non-eventful week of treatment. The cytoxin seems to have not had any effect on him and he is just doing great.  We have another blood draw next week to determine HAMA levels. Hopefully we well get scan reports next week ad well, which I pray will be good ones.

Before I go, a verse from James:

” 2 Consider it pure joy, my brothers and sisters,[a] whenever you face trials of many kinds, 3 because you know that the testing of your faith produces perseverance. 4 Let perseverance finish its work so that you may be mature and complete, not lacking anything.” James 2-4

We’ve been doing a lot of sermons lately about suffering and how life is just not fair. I tend to think that we all get caught up in this life and the crap we have to deal with, not to mention having to deal with people who are in the throes of Satan’s grip, and we forget that this life is but a stepping stone to a better place. I’ve been fortunate that Ben has been in a lot of them with me and he is staring to “get it”. So, no matter the outcome he knows that Heaven awaits him after his stint  on Earth.

Blessings
Matt

Ornaments for Christmas

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Ben spent part of the morning creating an ornament that will be sold to support pediatric cancer research. He named his ornament “The Festive Ship”.

He just got hooked up to chemo and should be finished in about 45 minutes. After that he gets the MIBG injection and will be radioactive for a few days.

Tomorrow is MIBG scan and CT scan. We should know next week what the results are.

Big day for Ben

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Another day of treatment down. Ben had Rituxamab and then bone marrow aspirated. He’s doing pretty good and enjoying a bit of homemade brownie chocolate chip cheesecake.

Blessings,
Matt

quick Ben video

Day on finished

Really, not much to report. Ben slept during the bulk of the treatment, waking shortly after his lines were flushed. Perhaps the rumors were true that this particular chemo isn’t as harsh. Of course, we won’t know for sure until 24-48 hours how much havoc it has wreaked on his body. Speaking of, Ben did gain a little bit and he is still inching up there height wise.

His blood counts are all good, too. We’ll be doing a lot of praying the next few weeks that the Riuxan does the job and knocks his HAMA count down enough to get him back to New York for Treatment. Unfortunately, it dawned on me this morning that there is a real possibility of Ben having to be in New York for some of Christmas break. We’ll take it if we have to but the thought of another Christmas spent in treatment just doesn’t sound fun…

Speaking of which, here’s a pic of Ben and I a couple Christmases ago when Ben spent almost three weeks inpatient. He was awfully sick due to the chemo…

Blessings to you and yours and have a great Thanksgiving!

Matt

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November update

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Sometimes, I really, really hate WordPress. I had just finished up a blog post when the damn thing crashed, thus wiping out the post…

Oh well, I’ll attempt to recreate in the next few paragraphs.

After what seemed like an eternity Ben is finally scheduled to receive Rituxan next week. He will receive three rounds of treatment over a three week period. Rituxan is a chemo that is normally used in non-Hodgkins lymphoma. It destroys white blood cells. In this case, we need Ben’s immune system to be knocked down some so that his body doesn’t reject the 3F8. That, my friends, is a paradox I’ve never fully come to grips with. (Paradox, for the benefit of some folks in Canal Winchester, can be found in a dictionary. Those can be found in libraries…)

Giving a kid high doses of chemo has been the standard treatment for the last 80 years. Some of the chemos Ben received, like vincristine, have been in use that long! Ive often wondered why we don’t have more targeted drugs. Of course, part of that is because the money for pediatric cancer research is just not there.

I saw a great presentation the other day about how much money COG gets for research. It was pretty sad but it also had some helpful suggestions on where we could get extra funding. If I can find the link to it, I will post it for your benefit, at least for folks outside of Canal Winchester who can read and make intelligent assumptions between cause and effect.

So, about the kids. They are doing really well. Ben is thriving in school, making our decision to hold him back look like a good one. His teacher labels him a superstar, which is pretty fantastic in my book.

Madeline, too, is doing great. She still loves to be a social butterfly, preferring her friends over school and parents at times. However, her last report card showed that she had above average scores on many of her subjects, so I’m pretty excited knowing I have to extra intelligent kids!

One thing I’ve learned over the past two and a half years is that no matter how much Satan throws at us, like using certain people in Canal Winchester to try and ruin our lives, is that God has our back in every situation. He walks with us and, if we let Him, will shoulder that burden. My walk with God has only started very recently and I’m instilling in Ben and Madeline as much truth about God as I can so they, too, know that God is sovereign and the evil little things and people in Canal Winchester that try to destroy us aren’t bigger than Him.

Despite Satan and his minions here on earth, we will overcome this and the other trials he puts us through.

God bless,
Matt

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