Ben Brewer's Blog

We had the opportunity to travel to Columbus to attend some of the BENefit this past weekend. We had a great time and the turnout was really good. It was very nice seeing all of our old friends and we’re blessed that the Fraziers took the time to put it all together. Once we get some pictures from the benefit (we forgot the camera in the back seat of the van) we’ll post them. Ben even gave a short speech to the folks and helped give away door prizes. Of course, no trip to Columbus would be complete without a little family drama, so we did our best to minimize it. Fortunately we’re all now on skype so family contact for the remainder of ben’s treatment will most likely be over the interwebs.

We’re now in New York, haveing arrived here the day after we got back from Columbus. Ben has tests this week that will determine what the 3F8 antibody treatment will entail. This will include a CT scan, hip aspersions and finally an MIBG scan. He had a little residual cancer after the last round of chemotherapy, so hopefully the radiation knocked it out.

Tomorrow should give us plenty of time to do some site seeing. Our first order of business is Rockefeller center, home to the Nintendo World Store. Ben will probably pee his pants when he sees it, so we’ll take an extra pair. Then we’ll head over to the American
Girl store, where Madeline will most likely wet her pants. We’ll bring two pair for her. St. Patrick’s Cathedral is also on the agenda then we’ll have to visit the Apple store… We’re I promise to not wet my pants unless they have an iPad on display.

We’re staying at the Ronald McDonald house a few blocks from the hospital. We’re really impressed with the accompdations and the folks working here. We’ll post some tips for other families making the trip out here. Tip #1 when your wife is hungry and cranky, don’t take the family to a pizza/dining establishment for dining. Opt for the quick piece of pizza… Tip #2 bring water, you’ll need it.

More tips as we get further into this. God bless and if you find yourself in Manhattan, let us know.

The Brewer’s