Site Activity
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Elizabeth Emmert became a registered member 4 weeks ago · View
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Matt Brewer wrote a new blog post: Ben the ham 4 weeks ago · View
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Matt Brewer wrote a new blog post: Round two update… Live from New York! 4 weeks ago · View
Ben started round two of 3F8 on Monday, August 9th. He is doing somewhat better this time, requiring what seems like less ‘help’ during and after the infusuion. Today was the first time I got to experience the administration of the wonder treatment and I am very proud of how Ben handled it. A friend likened [...] -
Nick Goraczkowski became a registered member 1 month, 1 week ago · View
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Joe Regallis became a registered member 1 month, 1 week ago · View
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Matt Brewer wrote a new blog post: No news… 1 month, 1 week ago · View
Really, things have been relatively mellow here since Ben got back from New York. About the only drama we’ve encountered is no getting his bloodwork back to Sloan in time for the next trip. Somehow the next day morning guarantee from FedEx really doesn’t count when you send something to New York… So, we’re here [...]
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Chris Stockburger became a registered member 1 month, 2 weeks ago · View
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Matt Brewer wrote a new blog post: Home tonight 1 month, 3 weeks ago · View
Madeline, Yoshi and Dad will be leaving in just a bit to pick up Ben and Mom from the airport. After what can only be described as an excruciating experience, they will be home for a couple of weeks before going back for the next round of antibodies. I can’t even begin to imagine the [...]
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Delainie Hendershot posted an update: 1 month, 3 weeks ago · View
Actually having a garage sale next week Thur-Sat 9am-4pm. 125 Jones Ave
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Delainie Hendershot posted an update: 1 month, 4 weeks ago · View
Having a garage sale this weekend!
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Becky Jacobson commented on the blog post 3F8 Treatment Update 1 month, 4 weeks ago · View
Thank you, Matt for explaining all this. I am in awe of Ben and his courage.
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Matt Brewer wrote a new blog post: 3F8 Treatment Update 1 month, 4 weeks ago · View
Update: For those of you wondering about 3F8, I’ve included some information from the FAQ Sloan Kettering has put together.
What is 3F8? 3F8 is the name of a substance called a monoclonal antibody. It attaches to GD2, which is a marker on the surface of neuroblastoma cells. 3F8 was produced by white blood cells of mice, [...]
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Delainie Hendershot posted an update: 2 months ago · View
Isn’t this bird cool?
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Delainie Hendershot posted an update: 2 months, 1 week ago · View
Just got back from camping and very tired.
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Matt Brewer wrote a new blog post: Next steps for treatment 2 months, 1 week ago · View
We heard back from Dr. Kramer this morning regarding Ben’s treatment. Though they did find a spot via CT in the same location, they are encouraged that it was there the second time and are still thinking it was post operative changes. Due to this, they plan to move forward with the 3F8 treatment on July [...]
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Matt Brewer wrote a new blog post: Ben has gone national… 2 months, 1 week ago · View
Parents magazine did a nice writeup of icing smiles, the company that created the Yoshi cake for Ben’s birthday. Please take a look at the article here: Parents.com -
Delainie Hendershot and Matt Brewer are now friends 2 months, 1 week ago · View
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Matt Brewer wrote a new blog post: Ben’s Ninth Birthday 2 months, 1 week ago · View
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Matt Brewer wrote a new blog post: Ben update 2 months, 3 weeks ago · View
Not much happening lately. Ben and Sarah have been in New York for a week and a half and plan to come home sometime around the 26th. He has so far weathered the combined chemo and radiation well. Hopefully this will clear him up to receive the antibodies next month. Ben’s birthday is June 22nd [...]
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